WAVE Working Committees

To actively promote the welfare of women living with HIV in Europe, we work in thematic committees led by WAVE Scientific Committee members. Any member can join the committee according to their interest.

The main activities of the working committees are:

 

  • Developing WAVE led research (e.g. literature review, data analysis)
  • Preparing endorsement letters for external activities or other forms of promotion for research which are in line with WAVE mission and philosophy 
  • Organising medical experience exchange (Peer-to-Peer programme, complementary to other EACS medical exchange programmes)
  • Organising thematic workshops
  • Designing surveys and collecting data

Committees:

BREASTFEEDING (INSURE- HIV and breastfeeding in Europe)

Supervisor:  Annette Haberl

 

In 2023 the article on "Guidelines and practice of breastfeeding in women living with HIV—Results from the European INSURE survey" was published in the HIV Medicine.

Read the article

 

Questionnaire 

 

In 2023 regular meetings on breastfeeding and HIV have started in 2023. People from all over the world met to discuss the results of the survey, most challenging cases and review the ongoing projects.

 

In 2018 the Israeli National Hansen Center asked WAVE to help promote the cause of universal antenatal HIV testing in Israel. A letter of support has been issued.

Read the letter of support

 

In 2018 breastfeeding article was published in Lancet HIV online:

Read the article

CO-MORBIDITIES AND AGEING

Supervisor: Ellen Moseholm

 

On 1 May 2023 a survey on healthcare perception among women aged 40 or more has been cunducted and is being conducted in 20 countries. The results are being written up for publication. 

 

In 2023 the article "Comorbidities and menopause assessment in women living with HIV: a survey of healthcare providers across the WHO European region" was published in the AIDS Care.

Read the article

 

On 8 March 2022 the systematic review “Comorbidities in women living with HIV” which was presented at the WAVE workshop at EACS, London 2021 by Dr Sonia Raffe has been published in the HIV Medicine Special Issue HIV in Women.

Read the article

HIV TESTING AND COMBINATION PREVENTION

Supervisors: Yvonne Gilleece, Ben Collins, Maria Jesús Pérez Elías

 

In 2023 the article on "PrEP for women in Europe: a systematic literature review" was published in HIV Medicine

Read the article

 

In 2021 article on "Achievements and gaps to provide pre-exposure prophylaxis (PrEP) for women across the European Region – Results from a European survey study" was published in the Journal of Virus Eradication.

Read the article.

 

In 2020 WAVE published a letter on women in the European Region in ECDC Eurosurveillance.

Read the letter

HPV-RELATED CANCERS

Supervisors: Yvonne Gilleece, Karoline Aebi-Popp

 

In 2023 the article on "Screening and prevention of HPV-related anogenital cancers in women living with HIV in Europe: results from a systematic review" was published in HIV Medicine.

Read the article.

 

The goal of this project is to identify the differences between programmes of prevention of HPV-related cancers between European countries, to identify the barriers to access to methods of prevention of cervical cancer and to create and implement European recommendations in order to decrease HPV-related cancers among women living with HIV. 

LATE PRESENTERS AMONG WOMEN LIVING WITH HIV

Supervisor:  Agata Skrzat-Klapaczynska

 

The project's goal is to estimate the epidemiology and the course of epidemiology of late presenters among women living with HIV.

MENOPAUSE ASSESSMENT

Supervisor: Anna Hachfeld

 

In 2024 the article "Management of menopause in women living with HIV – a comparative guideline review" was published in Maturitas.

Read the article

 

In 2023 the article "Collection of menopause data in studies of women living with HIV: A systematic literature review" was published in HIV Medicine. 

Read the article

 

The project has the following objectives:

1. Review how often and how menopause data is collected in European HIV-cohorts  

2. Review gynaecological cohorts/guidelines on how to assess menopause data a. for clinical care b. for research  

3. Formulate a recommendation on how to assess menopause data in HIV-cohorts, publish and disperse it and formulate menopause research priorities 

4. Formulate recommendations for HIV clinicians on menopause care for women living with HIV. 

MENOPAUSE- The impact of HRT on menopausal symptoms in women with HIV

Supervisor: Bojana Dragovic

 

The goal of the project is to assess the uptake of HRT in women living with HIV, and the effect on their menopause symptoms and quality of life.  

The first meeting of the intercontinental group aiming at creating an international HRT registry took place.

MIGRANT WOMEN

Supervisor: Nina Weis

 

In 2024 in co-production with NGOs, a feasibility study will be conducted as a first step of the development of a validated risk identification tool. The tool will help NGOs to identify barriers to HIV testing and needs amongst migrant women in a multi-country context.

 

In 2023 the article "Late HIV diagnosis among migrant women living in Europe — a systematic review of barriers to HIV testing" was published in the International Journal of Infectious Diseases (IJID). 

Read the article

 

In 2023 the article "Barriers to HIV testing and possible interventions to improve access to HIV healthcare among migrants, with a focus on migrant women: results from a European survey" was published in the HIV Medicine.

Read the article

WAVE IN UKRAINE

Supervisors: Karoline Aebi-Popp,  Justyna D. Kowalska, Sergii Antoniak, Svitlana Antonyak, Marta Vasylyev

 

Ukraine has the second-largest HIV epidemic in Eastern Europe and Central Asia. Almost half of the people living with HIV in Ukraine are women, the majority of them are “late presenters” and at the point of diagnosis have developed several AIDS-defining illnesses.

 

WAVE has been invited by the clinic of the Gromashevsky Institute of Epidemiology and Infectious Diseases, Academy of Medical Science of Ukraine to organise a workshop on topics related to women living with HIV.

 

After the first-ever WAVE workshop in Kyiv in 2019, which was well attended and received excellent feedback, the WAVE workshop has been adapted to an interactive online workshop organised multiple times per year.

 

WAVE can significantly contribute to improving the quality of care for women living with HIV in Ukraine by being an informal and educational exchange platform for clinicians.

 

All WAVE in Ukraine workshops.

WOMEN LIVING WITH HIV IN CENTRAL AND EASTERN EUROPE

Supervisor: Cristiana Oprea

 

The project aims at implementing a programme to improve access to prevention and HIV care for women living with HIV in Central and Eastern Europe (in particular migrants, women who inject drugs or are homeless).

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